Unfortunately began by leaving our son behind. The time on the road is too long for our very active 1 1/2 year old, who gets very antsy and uncomfortable in his seat. It hurts to leave him behind, but he's much happier staying with family.
We had our four hour ride to Albany, extremely uneventful, especially since we had two doctor appointments to get to.
~The first doctor appointment went well. We got some good news pertaining to her vision. Since her eyes have been clear for the last couple months they were better able to check her vision. It has slightly improved; 20/70 in the left, and 20/700 in the right. Even though it has improved it does not mean though that she will not have surgery. The doctor was good enough to offer to take on some of her follow up appointments and jokingly said to us "You had better start looking for jobs down here..."
~The second doctor appointment we sat for an hour at just to be told "I have nothing new to add". But also good news...we don't have to return to this doctor for quite some time!
Its a long and stressful day to sit in a vehicle for four hours and then three more hours at doctor offices with a four year old who just wants to play and move around. We brought her to Macaroni Grill, so she could eat a favorite food (spaghetti) and draw on the table. She had fun and filled her belly.
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| Ready for the ride! |
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| Enjoying her new portable DVD player! |
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| One of many phone calls back to family for updates |
The next day we got up early, drove two hours down to Valhalla where her next appointment would be to meet with her surgeon. We took the train station from Valhalla into NYC Grand Central Station. Raeya was extremely excited that she got to ride the train. She is definitely not a shy child and wanted to sit next to a couple of women my age. She kept asking me if they would talk to her and play with her. Luckily for Chad and I it was a very quick 45 minute ride into the city.
We walked around the city first taking her to FAO Schwarz. She LOVED it!!! She wanted to see everything and touch everything. The best part of all was that she got to meet her favorite super hero....Spider-man! Raeya has always had an infatuation with him...she was him for Halloween last year. As soon as she saw him her jaw dropped and her eyes enlarged to the size of saucers. For the first time in her life she was speechless and didn't move. You could see in her eyes the glitter of excitement and the twitch of happiness. She had met her hero. To us its just some guy dressed up in a toy store waiting for the next kid to have his picture taken with, but to a four year old with a large imagination its the guy who climbs buildings and swings from his web strands to save the people in the city.
Everything that day was large and exciting; the buildings, the honking horns of traffic trying to pass thru, people crossing streets, construction, chattering of cellphones, flyers being handed out, Christmas music in the background of every store.
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| Being told "You cannot cross the chain and play in the waterfall" |
But the most exciting moment of all was when she saw the angels and the lighted Christmas tree in Rockefeller center. How do you explain the excitement of a four year old...by the ooo's and aaa's whistling out her teeth, by the light in her eyes flickering the different colors of the city, or by the grin from ear to ear that won't disappear...
....at the surgeons office the next day we waited 2 1/2 hours to have a ten minute meeting. We were told in the ten minutes that we weren't even going to discuss surgery. We were told that Raeya has pediatric acne. The bacteria gets into her eyes and since her oil glands are not producing enough her eyes are unable to clean out the bacteria. The bacteria is what has been causing the styes, inflammation and irritation. It had also been causing some of her eyelashes to grow inward. He put her on three different medications to first get the initial cause of all her scarring under control. Then we must go back in two months to reexamine her eyes and discuss further treatment. We have no answers as to when her surgery will occur until we fix the cause of the problem first...so we are left with more questions and more waiting...
The waiting is the worse....I feel like we've been waiting long enough...
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