Starting out a new year...

Starting out a new year....
    This year has already started with doctor appointments. The last day of 2013, Raeya woke up with a full body rash and a temperature of 101.1. The poor baby was itching like a fiend! As soon as we were dressed we were off to the hospital clinic. My worst fear was that she was having an allergic reaction to her medications. She is beginning her third month of oral antibiotics...which can do so much to a tiny little body...(all I can think about is they are going to switch her meds again...she's developing a super bug...its going to lead to the extreme: Stevens Johnson syndrome)
    According to the clinic physicians assistant, Raeya had developed an allergy to her medications, and to stop giving her the oral antibiotic. We switched for the third time to another antibiotic...
     

   She was sick for three days straight....on the beginning of her third day the rash on her face had gotten stronger and she was throwing up. I had called the doctor after hours, and talked to a nurse far away in another state...I took her to her regular physician's office, but he wasn't in. She saw the physicians assistant who said that Raeya was fighting a viral rash and it was nothing to worry about and that her body would fight it off on its own. We were to stop the oral antibiotic that was just prescribed and go back to the original...
   How do we know what is right for her if we are constantly getting different answers....

Going to the Doctor's

We were worried if she was going to get better....She was worried that she would miss her "celebration".  Our family and friends knowing how much traveling, medications, and doctors bills that we have ahead of us put together a benefit for our daughter. Raeya was very excited about her "party" 
         The morning of the benefit her rash had just about disappeared, but the area around her eyes started to get red...she was well enough to go...bouncing off the walls excited! 

She had such a wonderful day! We could never express our gratitude for the hard work that was done to put together a fantastic spaghetti dinner, with a Chinese auction, bake sale and live music. Words to describe our feelings, a wave of emotions...burst of energy in highs and lows. To see familiar faces in our everyday lives working for our daughter, to watch a person we haven't seen in months or years walk in to support our family...how do you explain the surprise, the happiness, the excitement of everyone there coming together to make a difference for my Raeya. 
At a moment you want to cry and you hold back the tears...not tears of sadness, not today...but from joy, the happy fluttering butterflies that float in the middle of your chest that leave you breathless without words...